UNCF and Dan Quayle
A mind is a terrible thing to lose. Or waste. The people who came up with the original and the spoonerism were both right and somewhat clairvoyant in presaging what is emerging as an unsettling development in HIV care. I speak of the vague symptoms being brought to doctors' attention by their Poz patients. Lack of focus, memory loss, dizziness, minor motor losses, anger, confusion: any of this sound familiar? All of these things come with age or at least might come with advancing years. In a 75 year old person, such complaints draw a yawn from the doctor and a reassuring pat on the shoulder from him. But in a 45 year old HIV patient on a variety of toxic drugs whose effects on the central nervous system are known to exist, the medical profession shrugs its shoulders and suggests "further study." Out of one side of their mouths, the HIV experts claim the symptoms are due to the virus itself which sets up shop behind the blood brain barrier. Out of the other side, they suggest patients be switched to the subset of anti-HIV meds that have the unique chemical signature to penetrate it. If there is another side left, it is admitting that patients taking the penetrating drug are having just as much as trouble cognitively as the ones taking non-penetrating ones.
If I were confident that I were still in possession of all my faculties, I might be able to follow all the logic in this. But I am as certain as I am sitting here typing one mistake after another that must be back-spaced and corrected sometimes three and four times over that these conflicting bits of misinformation from the people peddling this stuff cannot be possessed of any intellectual honesty. There is no way to accept at face value anything the HIV science establishment tells us because it is so inconsistent within its own Escher-like structure as to be utterly unsustaining on any level.
The worst part of anhedonia is that you don't care about the fact that you don't care about anything anymore. I have had two people in the last week tell me they were ready to lay down and die. For the life of me-- and listen to who is using that cliche in this context-- I could think of no way to talk them out of it. Sure I tried to cheer them up by pointing out that a new Star Trek film is being shot right now for release next summer. You simply MUST stick around for THAT I whined half heartedly. But when you are staying alive by pouring toxic drugs down your throat several times a day at a cost of a grand a month, and the 95% of the world that has no personal frame of reference to HIV would just as soon pack you off to Gitmo for a high temp cremation lest you contaminate anyone else, you can't generate a lot of enthusiasm for much of anything. Including taking the final step. It's easier to plop down on the couch and listen to a record or read a magazine than to end your own life. And there really is a new Star Trek movie in the pipeline; I don't think that is a cognitive misfire in my memory bank.
